Awareness Raising

During World Haemochromatosis Awareness Week members of the North West Support Group manned a stand at Wrightington Hospital. Barbara Dunne, Suzy Makin, Glenn & Maureen Harrison, Howard & Eileen Don and Keith & Patsy Tait all did a stint during the week.  They spoke to hospital staff, some of whom had not heard of the condition, and visitors who, on reflection, felt they might be sufferers given the list of symptoms.  Great emphasis was placed on the need for diagnosed sufferers to have close family members checked for the condition.

On June 9th, Keith & Patsy were manning the North West Support Group’s stand at the Irish World Heritage Centre, where there was a conference on “Irishness”.  Haemochromatosis UK CEO, David Head gave a talk on the “Celtic Curse”, which was very informative.  It is said that up to 1 in 5 of the Irish could have the faulty gene causing Haemochromatosis.